For my parents,
the original Dan and Barbara Kennedy,
who died much too young.
They would have loved their grandchildren.
And their grandchildren would have loved them.
Table of Contents
Foreword
By Becky Kennedy. (From the 2019 paperback reissue.)
Introduction to the Third Edition
Chapter One
An Unexpected Journey
Chapter Two
Life Saving
Chapter Three
Just Like Tom Thumb’s Blues
Chapter Four
The Valley of the Shadow of Death
Chapter Five
Chaos Theory
Chapter Six
A Different Kind of Disability
Chapter Seven
On Her Own Two Feet
Chapter Eight
Stereotypes, Stigma, and Identity
Chapter Nine
The Bone Machine
Chapter Ten
The Storm Before the Calm
Chapter Eleven
Of Drunks and Divas
Chapter Twelve
The New Eugenics
Chapter Thirteen
A Place of Her Own
Acknowledgments
Notes on Sources